Pots syndrome how much salt

Please phone and get help. There is help available there. She is in Texas. I am scheduled to go see Dr Driscoll in early November. Were you happy with care and evaluation there? She had same symptoms as I have and no one else can figure out. Feel electrocuted. Many many sensitivities. Praying for any relief and any recovery! Hoping she is finally the answer and some help! Tori,Bless her heart, she has been thru Heck like u.. I have a similar problem, called pseudotumor cerebri, witch makes things that act as tumors appear in my brain.

I experience consistent migraines. I do not know of any coronations, but psedotumor celibri is yet similar to your problom, and I too have POTS. Maybe pots and brain tumors are connected?? I am sure NF coinsides with Dysautonomia. Your NF physician should be able to test and treat you. My step daughter has NF type 1.

I have a lot to say. I think I am about to write all of you a book about my suggestions so i would almost suggest curling up by a warm fire first! In our effort to give the terrible things affecting us a name, we have used this diagnosis as an endpoint, instead of actually naming the real underlying and interconnected thing that is really wrong with us.

It is a symptom of a disease or disorder. Instead of finding the exact problem and actually treating that which should make the symptoms go away. POTS is the name for a set of symptoms. POTS is not the name of any actual cause of any of your symptoms!

I agree totally and second your frustration, thank you! My response, that she should determine if that is an appropriate referral, was met with little if any understanding of that logic. I have the symptoms of P. I keep trying to find articles that will help me to control my symptoms.

I have poor sodium retention and very low blood pressure at times causing dizziness. I must drink water all day long and eat salty foods but must also eat a very narrow diet. No dairy, no gluten, no nightshade veggies or fruits and limit sugar intake. I have a very boring diet! I am also 72 years young and want to stay mobile as long as I can but I can tell that my hEDS has gotten worse as well as my possible P.

Sorry but the medical community has little to offer me but comfort. Any other articles out there that could be helpful? Why Sydney do you not eat night shades? If you do eat any, what happens? Just curious. I know your comment is from but here I am to offer hope. Please contact potscare. She has EDS and pots for 10 years and is well now. She brought a group of doctors together and researched and researched and she has found answers. Please call and talk to them. Also ask for her downloadable book on EDS and pots.

Her clinic is in Texas. Call her. Whatever is it to be perfectly healthy and able to do and orange theory class to then falling and breaking my front teeth and not being able to walk around a block is nuts.

Please go to potscare. There is help available. She had pots for 10 years and both her children had it. It made her really motivated to find answers. And she has them. You can get well from this. There is hope. Please call her. Tell her Cassandra sent you. She is the smartest yet most humble person. And she knows what you are suffering because she had it so much worse. She was in a wheelchair. Now she is a beautiful healthy person. Crystal I was interested when you said you are going through menopause as before I went through the menopause what were barely noticeable effects, ramped up to fainting almost every time I went out.

With extra salt and water and walking regularly, and avoiding ny triggers fainting is a thing of the past. However the digestive problems — all day nausea, going between constipation and several bowel motions, and developing many food tolerances has taken over my life. Not sure where to go from here. Any suggestions anyone?

Ok, having got that off my chest let me continue with less ranting and more actual helpful things. First I would like to talk about food and how the body has a million different things happening when you eat, many of which affect heart rate, blood pressure, adrenal response, nerve damage or nerve regeneration and so on. For people experiencing POTS like symptoms, the suggestion of eating small frequent meals can not be too strongly recommended! It goes much deeper and detailed than simply eating low carb, small frequent meals though!

When you eat a simple carb thing like; starchy foods rice, potatoes, wheat, corn , fruit, carrots, anything made using cane sugar or corn syrup, processed grains, pasta. Then your body gets literally injected with the fast breakdown of sugars within 5 to 15 minutes after you eat them. This triggers off a bunch of reactions from all your organs that in the case of POTS, might be already stressed and overreacting, like your adrenal glands, kidneys, heart etc.

In a normal functioning adrenal gland, they see new chemicals come into your bloodstream like vitamins, hormones, sugars etc and so they secrete their own combination of chemicals to compensate for what they see in your blood. A bunch of different things will grab sugar out of your bloodstream as it flows along through your body and convert it into other stuff.

But to help the newly introduced simple sugars from the food you just ate move around quickly through your body so they are not just sitting around causing damage, your adrenal glands secrete adrenaline so your heart rate picks up and beats faster to move the bad sugar around faster through your body.

But now it has left you weakened. Your adrenal glands have less stuff in them now. Hi Emily I know that yours is an old post but this is exactly what happens to me after I take vitamin supplements- tachycardia. Please reply about what to do to mend the adrenal glands so I can function properly again.

Hi Emily. Did you write that book on POTS? You have awesome and clear information and I appreciate everything you said about food. It helped me. Thank you. If your bloodstream suddenly has a decent increase of a stimulating vitamin, like any of the B vitamins, Vit C, D, or zinc, then the exact same adrenal gland reaction happens like it did for seeing the sugar in your blood, except stronger.

Then the spent adrenaline is turned into pee. These vitamins often have other reactions like being vasodilators, meaning they open up your blood vessels making them wider and more porous so stuff passes through them easier and you get increased blood flow into areas that might not normally get good blood flow. This helps get good stuff into hard to reach areas. It also triggers off your adrenal glands to compensate EVEN MORE than normal, so it dumps even more adrenaline into your blood and you get an even bigger tachycardia reaction to sudden high vitamin intake than you do with sugars.

Especially the B vitamins! While simple sugars or simple carb foods might trigger a small tachycardia episode that may make you hit bpm to up to bpm ish range, the tachycardia triggered by a stimulating vitamin will be higher and have longer lasting side effects because it caused your adrenal glands to dump even more adrenaline and other chemicals out.

So now they are even more depleted and stressed out. This is what makes you feel completely exaughsted after a tachycardia event, even for days after the event. It takes time for your body to make more adrenaline to use. You are just low on all your chemicals. That horrible feeling of complete fatigue can and will go away if you can stop the chain reactions happening in your stressed out adrenal glands and rebuild your energy stimulating chemicals back up again, without starting the over-dumping cycle all over again.

So after understanding this, you can see how taking any kind of stimulant, like caffeine, will have the same end result. I agree. I have actually just came across this information myself. I was being intuitive about how my body was feeling and the trends of others. My past as well. I had anorexia. I am good at eating the right foods.

But a balanced meal and different nutrients not so much. I never was. Could salt possibly reduce the chain reaction? I am glad you talked about the adrenal glands.

I did not know that. I did know my body was dumping everything good out despite my reduction on water. They talk about a diet but never get into the details of what you need. Not to mention they rely on labs too much for malnutrition. If you find anything else about this chain reaction pllllease share. The end points of a illness seem to be where a doctor has the least knowledge of. It is where the body gets stuck in a trap.

It need these good things to get better and recover. However it is not accepting it no matter what we try to do. Also in turn can make it worse. I also have Ibs which is another thing I never had. Possibly leaky gut or maybe that is the adrenal.

When I try to put in those nutrients it hurts so much. The body cannot recognize what is good and what is bad anymore. The question is how do we get it to recognize and accept the good? It almost looks at all things as threats. There has to be something else that is blocking any possible recovery. I know in the brain when we are not gettin what we need it reacts in the same way.

The chemicals are all over the place. It trys to compensate. So even if you are taking in some good things … the other chemicals that are supposed to react with it are doing the opposite. They make more of the cortisol chemical usually. Probably why my head feels odd and heavy most of the time as well. So some other deeper reaction is occurring.

It will continue to react in this way unless something changes. Unless it is given something else that it is missing. The chemicals I described from the brain were also from a depression study. So they compensate in what they can make. What could we possibly be missing? I never was good with food since I was a kid growing up.

I would not know how my body got to this point except my anorexia relapses. Just like those chemicals in the brain, the body is doing. Before we can get those good nutrients and heal what is bothering us. Whatever that missing key is needs to be fixed and worked on first. What is it? A nutrient to unblock what we miss? Something in it specifically? That means that five grams of salt contains approximately 1. This number can be useful when tracking salt in food with nutrition labels, which often list sodium content.

Smaller Meals After eating a large meal, much of our blood is redirected to aid in the digestion process, which, for POTS patients, can increase symptoms. Therefore, it is recommended to eat several smaller meals throughout the day in lieu of two or three large ones.

Examine Your Reaction To Gluten Patients who have gastrontestinal symptoms may want to speak to their doctor about getting tested for Celiac Disease. Some of the blood tests for Celiac Disease require the person to have been eating gluten for several weeks prior to the test, so don't switch to a gluten free diet until you have spoken with your doctor about a possible Celiac blood test.

Even if you don't have Celiac Disease, there appears to be a second group of people who have non-Celiac gluten sensitivity. There is no definitive test for this, so the best way to determine if non-Celiac gluten sensitivity is causing or contributing to your gastointenstinal symptoms is to eat a gluten free diet on a trial basis. Some individuals notice a benefit within a short period of time, while other people take about two or three months to notice a benefit.

Of course, some people do not notice a benefit or change in symptoms at all when avoiding gluten. Examine Your Reaction To Dairy Similar to gluten, some individuals have a lactose intolerance, while others can have a true allergy to milk protein. Some POTS patients report feeling less symptomatic consuming fewer or no dairy products. Note, if you do have a lactose intolerance, you can still consume some dairy products that contain little or no lactose depending on your sensitivity.

There are also supplements available now that contain the lactase enzyme needed to digest lactose containing dairy products such as Lactaid.

If you eliminate dairy from your diet, be sure to include another healthy source of calcium in your diet. It is therefore useful to figure out if it helps you or if you should avoid it. Alcohol is dehydrating and can lead to increased hypotension through dilation of the veins and thus should be avoided by most POTS patients. This is done in order to help re condition the patient's body to orthostatic stress, 6 and this can also help patients that may be experiencing gastric motility problems that result in acid reflux or G.

The Berkeley Wellness Letter website. Accessed Oct. Raj S. But even after recovering from mononucleosis, the fatigue and other symptoms persisted. Over the next few years Taylor received numerous heart tests, including an echocardiogram, but no one could determine the cause of her high pulse rate, fainting and unwellness. She also persisted in seeking answers for her illness. Then a cardiologist noticed Taylor rarely stood — or sat — completely upright.

She often leaned or supported herself while in these positions. That physician took her heart rate upon standing and noticed it increased. He suspected it might be postural orthostatic tachycardia syndrome POTS , a condition that affects up to one per cent of the population, the vast majority young women of childbearing age. POTS causes a host of often-debilitating symptoms like fatigue, dizziness, tachycardia and fainting.